Written by Effective Treatment for Her Daughter’s Epilepsy Leads to Alternative Treatment:
Before I reprint the article written nearly a year ago about Liz and Jadyn Minda, I must say it’s been such a pleasure to work with a mother that has had so much infulence on so many other parents. It’s been nearly 2 years since we met online and the creation of “Jadyn’s Epilepsy occurred. Since that time I’ve watched on and participated with Liz as she went from a Compassion patient to now, a volunteer at a Compassion Center that provides for others. Jadyn always puts a huge smile on my face and when I post her updates the world gleams with happiness as we see a beautiful child transform after Epilepsy controlled her life for so long.
Reprint By: Madison Hafitz, Patients View Institute
“Have traditional therapies been unsuccessful for you or a loved one? Have you had to fight for unconventional alternatives?
Liz’s story is one of a mother’s fight to pursue the best treatment for her daughter. When Liz gave birth to twins in 2007, both children were healthy. But at 18 months, her daughter, Jadyn, experienced a febrile seizure. The next few years she appeared to be fine until she experienced another seizure at age four.
- 10 different medications. No luck.
- A Ketogenic diet. Fail.
- Epidiolex Study. Unsuccessful.
Efforts to treat Jadyn’s intractable epilepsy with conventional drugs were only making Jadyn sicker and the life-threatening side effects associated with these drugs was not a risk worth taking. What helped Jaydn was Cannabis.
Where Jadyn has suffered more than 11 thousand seizures over 7 days, today, medical marijuana helps reduce the amount and severity of 9-year-old Jadyn’s seizures. Liz tells us, “We have complete daytime seizure freedom while continuing adjustments for stubborn sleeping seizures. The side effects include increased appetite, improved cognition, improved motor skills, and the returning joy on Jadyn’s face.”
In an effort to destigmatize cannabis as a viable treatment option for Jadyn and other children suffering seizures, Liz took to social media and created the Facebook page Jadyn’s Epilepsy Page where over 400 people follow, share, and connect to advance the legitimacy of medical marijuana as a treatment option. Liz has even offered testimony before the Rhode Island House Committee on medical marijuana’s effectiveness.
“Jadyn’s mother is a national leader promoting acceptance and awareness of this alternative treatment, that she has seen work time and again for Jady’s condition and many other debilitating and painful diseases, despite attitudinal, medical, insurance, and legal barriers,” says Diane Stollenwerk, PVI Co-Founder and Board Chair, on awarding Liz and Honorable Mention for the PVI 2016 Impact Award.
By sharing her daughter’s story and being a patient advocate for others, Liz’s story demonstrates the PVI principle of Empowerment.
Read more about Liz’s journey and tireless efforts to raise awareness and social acceptance for medical marijuana through the website Jadyn’s Cannabis Cure.
See the difference in Jadyn’s quality of life when treated with medical marijuana as compared to conventional treatments where seizures did not subside. (Video not included)”
What a nice write-up! Jadyn has made so much progress since this was written, I can’t wait to share it with you all.
She’s been doing extremely well according to her mom with the use of CBD. Although whole plant Cannabis Oils have had favorable outcomes it seems as if Jadyn prefers the CBD oils from mom’s input lately – they’re working well!
Of course I would have much more to say, but I wanted to print this as an intro to Jadyn and all that her mom has done to help her. Parents around the globe have became research experts having to literally teaching their own doctors about the Endocannabinoid system.
Another huge smile from Jadyn, I’ll update this soon and let you all know how 2017 has been for little Miss Jadyn!
Another child that has had her life alterned for the better thanks to nature. Cannabis helps so many people in so many ways it’s incredible. From killing off cancer cells to choking tumors that threaten lives daily to stopping seizures for kids like Jadyn. The plant is truly incredible!
Mike Robinson, Medicinal Cannabis Patient
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