“We’re Celebrating 36 Hours Seizure Free” – T.S.C. and Cannabis Oils

Heather, 

     I can’t express to you how it makes me feel inside to know that your son is doing better. Your initial query to me was one in which I saw a mother distressed, this isn’t unusual. At the same time, I saw a combination of pharmaceuticals with cannabinoids that simply don’t get along. Parents around the globe are doing their very best to attempt to gain freedom for their children who are developmentally delayed, having seizures, cancers, and the list goes on. The biggest issue I’ve found is the one in which you were having – so many products on the market and so little direction from those who make them – or absolutely zero direction in most cases. And as you shared this left you to the world wide web and the information flowing on that highway that’s no longer very clear – as a matter of fact I’d go as far as to say most of the information shared online is so muddied by misinterpretation that even those with the best of intentions could be giving advice to others that would indeed do harm vs. good. This is a very difficult subject as so many just want to help, so many are debating which cannabinoid to use and how, and many of them are gaining information from sources they feel to be trusted. 

    The scenario you were in with your son is all too common. Parents gain access to cannabinoid medicines of various types and are very concerned about using THC so they opt for CBD because it’s so widely accepted nowadays. Now some have ventured down their own paths to find what works best for their children as they have the ability to grow, extract, and create medicines for them – much like I do for Genevieve minus the grow part. This gives someone such as myself a huge competitive edge as I’m able to adjust her protocol continually to find that perfect storm of cannabinoids and terpenes for her. What many don’t understand and likely won’t until they face a situation where their protocol becomes ineffective is that changing strain types isn’t a hassle or a problem as so many will advise people online about – instead, it’s exactly what has been necessary not only for Genevieve and myself – both of us have severe epilepsy – but also for the plethora of people that have come to me through the years for a patient to patient advice. With just about anything we use medicinally our body gets a big used to it – the beauty of the cannabis plant is you’ve got so many strains and types to choose from which makes trial and error a bit more of a job but gives an option unlike any other type of medicine – including other types of plant medicines. 

      As the cannabinoids were changed in your son’s regimen, his body responded. In your desire to gain freedom for him from severe Autism and Epilepsy and other diagnostics, you fell into what I call the ‘CBD Trap’. This is when people read so much about this amazing cannabinoid tunnel vision occurs. Suddenly scare over THC begins to set in deeper and it’s utilized at very low levels if at all. This, as you found, is a mistake. The biggest reason isn’t that THC works better – it’s because CBD has so many drug interactions that can cause a wean to become more difficult from pharmaceuticals unless it’s utilized to modulate the blood serum level of the pharmaceutical a person is terminating use of. As you learned certain seizure medications increase in blood serum levels when CBD is given with them – such as the drug he is currently weaning off of that failed to control seizures. When we utilize CBD to increase the blood serum level while dropping the dosage it allows for a smoother transition to plant-based medicines such as cannabis extracts. When we looked at his overall protocol and made a huge adjustment to allow THC to run the show and only utilized CBD to modulate the withdrawal, as well as the THC, affects – the big change occurred. Now many wouldn’t be celebrating as you and I are today – but we know the facts that many do not. 

       Over a decade ago very solid research was done showing that over 1 million Americans have treatment-resistant types of Epilepsy or seizure disorder like your son has – meaning that these pharmaceuticals end up causing us a nightmare when they don’t work as we have to wean over and over. I’m nearly 54, have had Epilepsy for 25 years now due to a head injury, and have been through over 30 different pharmaceuticals that all failed. While CBD did a great job in helping me gain control of a very brutal Epilepsy diagnostic (Severe Refractory with Status events), it did not help me maintain that control on its own at all. It took literally copious amounts of THC oils, THC and CBN infusion, and other cannabinoids with terpenes to continue down the path of recovery from so many years of what seemed like nonstop seizures. Discovering how to infuse MCT oil with raw cannabis was literally the key not just for me but for literally thousands I’ve worked directly with over the years – and now it’s the key to your son’s recovery as well which gives me the chills.

         It was less than a month ago that you made contact about how your son seized all night long even using multiple different types of cannabis oils – all of them being THC dominant except one very low-dose THC oil. When we examined your son’s pharmaceuticals we found CBD: Drug interactions existed and we then created a plan that would take the negative interaction and use it positively to help him escape the pharmaceutical he’s only gaining side effects from vs. seizure control. At that time his wean was failing, his cannabinoid medicine was not working, and his night nurse was running back and forth to him as she watched closely on the video monitoring that keeps him safe through the night. When I viewed videos of those troublesome nights we looked at where the seizures were starting in his brain (focal points), we looked at diagnosis, his entire health history, all pharma and over the counter medicine use, his daily functioning, his behaviors both with and without CBD, and we made a plan based on a mountain of data – not based on someone’s comment left on a social media network. Now I comment quite often on social media so I’m not putting that down – but I tell people on a daily basis exactly what I told you. Do not listen to me as your sole source of information and question everything I say. We all should be doing this so we learn as much as we can on our own. How much did we learn in school from our teacher and how much did we learn at home doing our assignments with no help? That question has an easy answer – when we empower ourselves the true answers come to us. 

         Congratulations on your first 36 hour period without a seizure for your beautiful son – he’s an inspiration to me and so many others. As the brain calms and stops seizing it’s like a Caterpillar that’s escaping its cocoon. There is an ‘Awakening’ that we’ll address more in a future article – for now, I want to share with the world my very humble congratulations with you as I find a way to thank Mother Earth for helping yet another child to find the light that so many of us are missing in such a dark world. The ability to escape an environment of pharmaceutical harm exists for so many of us that simply are not gaining any efficacy from the use of it is here – it’s upon us now with cannabinoid medicine. The world needs to hear more about you Heather – and your son. I look forward to sharing your journey. Thank you so much for sharing this beautiful victory with me.